Disease- Speaker NOTES/ SLIDE prepare an in-service training for clinic staff members to fully understand the challenges faced by HIV/AIDS patients as they near the end-stage of their disease along with support options for patients and caregivers.
Discuss the patients perception related to the disease on the following factors:
Thoughts, beliefs, and fears that may be held by the patient.
The role culture (race/ethnicity, religion/spirituality) plays in quality of life as the disease progresses.
Why is it important for health care workers to understand these perspectives?
Discuss biases and stigmas associated with the disease.
Identify where those biases and stigmas may present within micro- and meso-level interactions
Analyze the needs of a person and their caregivers facing the end-stage of the disease. What changes need to occur in the home to support the patient and the caregiver(s)?
What services are needed to assist in the care and management of the home?
What are the emotional needs of the people within the micro level? How will they be addressed?
What other types of health care providers may be enlisted to support the patients quality of life?
Research community-based programs that can possibly meet the needs of those receiving palliative, Hospice, and/or end-of-life care.
Discuss the availability of the services you identified within your community.
Identify costs and payment methods for the services.
How will the family/caregivers be burdened by enlisting additional services?
Discuss the rationale behind collaborative efforts in health care. Summary
Explain your rationale as to why the information in this presentation is important for the staff to know.
Explain why this information is important to the patient, caregivers, and family to know as they navigate the health care system and community resources.